Day eleven.....

Been out all day & went a bit funny while out, ok now though..... Had Shauna with me so that was good, went white (very) & dizzy almost past out, I hate it when that happens as I get no warning.
Still taking the GH so that is going well apart from the sickness & the hunger xXx

Day five......

It's now day five of the second time round & the sickness has kicked in, so not feeling too good but onwards & upwards xXx

Finally.....

Just got a call from the Dr after hours & days of being on the phone & in the surgery.... I am going to be getting the prescription now, need to pick it up later...... So yay am happy once again. Dr said they got a call from the PCT saying I should never have been told I was not going to get it but they had to go by their protocole & he is very sorry, which I understand. I have now made my mark in the new surgery & every Dr there knows who I am xXx

It's a new day.....

Waited, waited, waited..... Called, called, called..... Finally got a call back, my new Dr has spoken to the PCT in Welwyn & I should have heard back this afternoon, no call so will have to call in the morning. No-one can get hold of my consultant & the Dr needs to talk to him as well...... What made me laugh was the Dr asked me why I was on this GH, I explained & he said "It's a very rare thing all this I have been a Dr for a long time & this is not a normal thing to be prescribed, to adults"... I know all this, lol. Oh well will see what tomorrow brings.

I still have an awful headache, think it's because my brain had the shock for three weeks of the hormone then it was taken away fast... So not feeling good at the moment xXx

It's over....

Just been confirmed... The new Dr's have said they will not supply it as it's too expensive & the hospital cannot for the same reason... Lucky if I have two years left as once my brain (Piturity Gland) shuts down, I'm dead... I am going to have more frequent coma's, my memory is going to get worse, the pains will get worse... The GH was the last resort to give me a little better life xXx

Not a happy bunny.....

Things not going well.... Finally after years have managed to change Dr's & felt rather relieved.... Went in Thursday last week they had all my notes on all my other medications but nothing on the GH, so I was given a prescription for everything else & was told they needed the letter that was sent to the other Dr so they could put it on the computer & would write it out for me. So I phoned the hospital & explained they said they would send it & have done so (this was Friday), still no sign of the letter this morning so the receptionist at the Dr's phoned the hospital & they faxed it through..... Yes finally I think as I have not had any of the GH since Thursday or was it Friday, I do not know cannot remember.... Just got a call from the the Dr's surgery they do not think they can supply this GH... I have been without it now for three days & am feeling not too good.... The hospital say the old Dr did get the original letter as far as they know should have sorted  it all before I moved....
Feels not right to me as they would not let me move surgeries then all of a sudden it's ok & the letter goes missing while I am on the move... I am not impressed, have waited five years for this, there is now a chance it could all be taken away before anything has chance to work. Hope anyone reading this is having a better day that me, lol xXx

Day fourteen......

No change really, been dizzy most of the day & have noticed my blood sugars are high xXx

Day twelve.....

No actual sickness last night but was nauseas.... Have quiet a few bruises where I inject my GH xXx

Day eleven......

Ok, right well over the weekend I had a few bouts of sickness, not sure if it's due to the GH but not sure if it isn't, not getting it in the day just at night & I take it at 21.00........

Am due to come off my pill tonight & have boobs the size of football & they feel like bullets & very sore, am guessing that's to do with the GH. Am feeling very shaky & tired. Hope everyone had a good weekend xXx

Not much going on.....

Things pretty boring at the moment, nothing happening or to report.... I feel I am on too lower dose at the moment but will find out when I see the consultant next xXx

Day five.....

Been feeling sick most of the day & very panicy but sort of feel brighter.... I can feel my heart beat & I feel like I am very slightly rocking or jumping a little, I used to get that when my GH was a little higher, so am looking on that as it's working, then again I could just be having a bad day........


Wish I had someone to bounce off with all this..... Finally changed Dr's so am with (so I have been told) a better surgery, lets hope they are going to keep my consultant up to date & help me a little more xXx

Day, what ever, not sure.....

Have now been taking the Growth Hormone for about four days...... Am finding my memory is getting worse but not sure if that's to do with the Growth Hormone or if it's just me, lol. So no change really & I am only taking 0.20 so it may not be enough, that's it for today.... Hope everyone had a good weekend xXx

I start this evening.....

All done now, I can start taking my Growth hormone, this evening.... Now the fun starts xXx

No change

Still in same boat, have no idea what's going on... What worries me is the hormone expires in four weeks, when kept in fridge & three weeks when kept at room temp.... I have already had it a week, I do not want it to go to waste as it's not cheap.... Hope everyone is well xXx

Today xXx

Boring stuff really, things are getting complicated & I am very stressed, so am not going to post till things are sorted out....... If I were a child things would have been sorted years ago but because I am an adult, I do not deserve to be treated like a human being....  I have still not started the hormone...... I am just a number..... xXx

Spent most of the day on the phone, trying to work out what's going on.... I am so confused (believe me that does not take much), my consultant said it's 0.06mls I am meant to be taking (cannot get hold of him). The pen people say it's 0.20mg I am meant to be taking.... Arhhhhhh, I just want to start taking the stuff & see if it works, need to make sure I am taking the right dosage though, so still waiting, maybe the call will come tomorrow..... I have phoned him twice & he is very busy.... I do not want to be too puchy as he has done so much to help.

Woke up this morning all puffy & looking like a marshmallow women, I hate it & have no idea why some day's I wake like that & other days am fine...... Thing is most of those days end up with me having a fuzzy head & if I go out I need someone with me as I tend to have a funny turn & faint, we think maybe it's the hormone levels going down further & my blood pressure dropping as well.... Still need to work out why when I am puffy, the other stuff happens as well......

That's it really for today, am hoping I get a call tomorrow to tell me exactly what's happening & what I should be doing...... I did say I wanted to go & see him rather than doing it over the phone.... Hope everyone is well xXx

Day two.......

Actually have no idea why I am doing this as I have not even started the hormone yet, so really should leave it till I do as this is what it's all about. Waiting in all day for my consultant to ring, usually he phones back straight away so am guessing he has run into a few problems but on the other hand no news is good news (so I have been told). 

Head has been fuzzy all day but I have been looking after a sick little boy, so it's probably the smell of sick in the air....... That's it really today, rather boring really...... Will not be posting over the weekend as I will not here anything till Monday .... Hope everyone has a good weekend xXx

Well here I go....

Have never done anything like this before but hey thought I would give it a try & see what happens, so here goes.......

Hi I am Sheryl, I am a thirty six years young (lol). I am diabetic, have been for thirty four years & was supposed to be starting the Growth Hormone yesterday, problem is my pen device does not dial to the amount I need so yet again I am waiting to here from my consultant as to what will happen next.......

Am going to get the boring bit out the way.... The reason I am on the Growth Hormone is because five years ago I had my second son & before, he was forceably ejected from my body I got something called asidosis, which made me have two major heart attacks. HDU did not realise I had the first one till my husband pointed out "that's not the babies heart, that's her's" on the monitor. Panic ensured & I did not get enough oxygen or blood to my brain, so now have & have had for the past five years a tumour (so they call it) in my piturity gland but really my piturity gland is dying & most of it is dead as I had a piturity infarction.

I have been fighting for five years to get the GH (growth hormone) & yay have finally won.... It's a very lonly place being an adult that is dignosed as an adult with as many hormone problems as I have, so if anyone knows anyone else that has been dignosed as an ADULT with GH problems or deficiency, then please put them in touch with this blog & I would be very happy & relieved to talk to someone else in the same situation.... I have joined a few sites but everyone is a parent with a child with GH problems or an adult that was dignosed as a child.

At my age my level of GH should be 86 I believe but mine is 3.3..... I also have hardly no steroids, so find it very hard to fight infection.

I had a bone scan which revealed I have small holes in my bones (it's not bad) so I have the start of osterporosis, due to the fact I had no periods (& my other hormone problems) for three & a half, four years & was finally given the pill because of the scan but my Dr said I should be happy I am not having them.

They thyroid is also low, I have tried taking Thyroxin but for some reason it makes me very ill & I cannot sleep while on them, so I was taken off them.

I have missed loads out, I know I have but if anyone has any questions, please just ask...... I am going to try post everyday as what I have is so rare from what I can tell. I am hoping this blog will help other people & hopefully I will find someone else, that's dealing with this...... xXx